Dermot Devlin campaigned to get Vimizim approved in the UK after suffering from a rare degenerative disease.
The government legalised the drug on Monday and Dermot had his first treatment on Tuesday.
The birth defect, called Morquio, means his body is around 3 foot tall, which cramps the organs.
One major organ affected is the lungs - which resulted in Dermot collapsing on a plane.
He hopes this new treatment will give him back his independence.
Dermot has also called for the Irish government to follow in the UKs footstep.
King and Queen tour parts of Titanic Quarter during Northern Ireland visit
Police patrols stepped up after ‘threatening message’ sent to schools
Springhill families accuse Government of ‘silence’ over inquest findings
Police appeal following Omagh road death
Comments
Add a comment